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", In another tweet on Thursday, Engel said: "Researchers are making amazing progress using Henry's cells to help cure RETT Syndrome so others don't have to endure this terrible disease. But research takes time, and Zoghbi said shes heartbroken that she and her team werent able to bring to the table something that could help Henry directly. But the one I was thinking about today was his tenacity. [38][39][40], Engel reported on Firebase Restrepo and the soldiers of Viper Company stationed in the Korengal where he showed the fierce firefights taking place between U.S. soldiers and Taliban forces. The syndrome is a rare genetic disorder with no known cure that prevented Henry from developing in the long term. This disorder, which has no cure, causes a progressive loss of motor skills and language. [1] He was assigned to that position on April 18, 2008 after serving as the network's Middle East correspondent and Beirut bureau chief. [42], Engel reported extensively on the Arab Spring movement. In May 2006, he assumed his role as senior Middle East correspondent and Beirut bureau chief. Dr. Zoghbi and Henry from a 2019 TODAY segment. He had a tremor. "Our beloved son Henry. While many media outlets pulled their journalists out of Iraq shortly after shelling began in March 2003, Engel stayed, and was subsequently one of the only Western journalists in the country. In her free time, she enjoys traveling, watching bad reality TV and consuming copious amounts of cookiedough. Georgia Slater is a writer/reporter on the Parents team at PEOPLE. [21], Engel reported on the Israel-Gaza conflict of 2012, the continued violence stemming from the revolution in Syria and its consequent civil war, and the political transition of Egypt following the election of President Mohamed Morsi in June 2012.[22][23][24]. It is more often found in girls and there is no cure. We gather on our bed several times a day for what we call 'cuddle parties,' where we kiss him, rub him, praise him (he loves to hear his name and be praised) and curl his thick, gorgeous hair in our fingers," he wrote at the time. Zoghbi met Henry within his first year of life, after Engel and his wife, Mary, noticed their son wasnt reaching usual motor milestones the first sign of Rett syndrome for many children, according to the foundation. After a series of medical exams and a genetic test, doctors discovered that he had a mutation in his MECP2 gene. "But Henry's journey continues. 12,221, This story has been shared 9,366 times. ", Our beloved son Henry passed away. Rett syndrome is a rare neurological disorder that affects the way the brain develops, according to the Mayo Clinic. He had the softest blue eyes, an easy smile and a contagious giggle, the NBC News chief foreign correspondent tweeted Thursday morning. What is Rett syndrome, the disorder that Richard Engel's son had? - NPR He was almost 7 years old," Engel said. Henry Engel Died At The Age Of 6. When Zoghbi uncovered that Henry was the first person observed to have his particular mutation to the MECP2 gene, she needed to do more research, so she recommended Henry be seen at Texas Childrens Hospital, where doctors could treat and track his symptoms to see if they followed the usual path for Rett syndrome. Richard Engel honors late son on his 7th birthday - Page Six Studying [Henrys] cells helped us to think a little differently, to find yet one more approach for developing therapies for Rett, she said. It also caused numerous underlying health conditions including impacting his breathing," he continued. Mary and Richard," Engel wrote on Twitter. Henry is continuing to help find a cure for the disease that eventually took his young life. [4], In May 2015, Engel married producer Mary Forrest. It was really amazing watching them work as a team, Zoghbi said. Sitemap, Your California Privacy Rights According to Zoghbi, Henry left a lasting impression on the entire Duncan NRI team and their ongoing Rett research. Fox says Parkinson's battle getting 'harder': 'I'm not gonna be 80', Padma Lakshmi claps back at trolls: 'I have boobs, I have nipples', Kendall Jenner rocks sheer top, fur mini skirt for date night with Bad Bunny, Miley Cyrus mom, Tish Cyrus, engaged to Prison Break star Dominic Purcell, Fans confused over Lala Kent, Ariana Madixs White House dinner appearance, Woman has 'loud and full body orgasm' during LA Philharmonic concert. Courtesy Richard Engel. Researchers are making amazing progress using Henrys cells to help cure RETT Syndrome so others dont have to endure this terrible disease, Engel continued in a follow-up tweet, providing a link to Texas Childrens Hospital, which is fundraising for the cause. 2022, Deadline Club National TV Spot News Reporting. Our beloved son Henry passed away. [38][39][40] He often traveled to the Korengal Valley, otherwise known as the "valley of death", one of the most dangerous outposts in Afghanistan. Engel also opened up about the feeling of watching his younger son surpass Henry in developmental milestones. Richard Engel's son has a rare mutation of a gene that causes Rett Syndrome, a disorder usually found in girls. With regular therapies to keep his body moving and his mind active, he was making progress. Learning to take a few steps in his walker and communicating with cards and a computer.". "Mary and I are so excited to introduce our new son Theodore (Theo),'' Engel, 45, wrote in an email to "Today"Monday. [10][11] He then spent his junior year of high school in Italy and became fluent in Italian. Richard Engel has opened up about the feeling of watching his baby son reach each developmental milestone while knowing his older son, who has a rare neurological disorder, may never reach. Richard Engel shares difficulty of watching baby son 'pass' by older I got some books, and the smiles I got from him he was happy, she said. In 2018, Engel recalled the shock of learning that his son will likely never be able to perform tasks such as walking or dressing himself. Get yours now, Shop these 7 amazing Amazon deals ahead of this weekend, The 46 best Mother's Day gift ideas for all moms in 2023, How to watch 'Citadel': Everything to know about Prime Video's new series, Where to buy the best outdoor patio furniture and sets online in 2023, Pregnant Rihanna models vintage Chanel ahead of Met Gala 2023, WNBA star Brittney Griner is heading to the Met Gala, Everything we know about Met Gala 2023: Guest list, theme, how to watch, Elon Musk Tells Bill Maher Woke Mind Virus Is Dangerous On Real Time, 2023 NYP Holdings, Inc. All Rights Reserved, Nick Cannon celebrates Jada Pinkett Smith's 'Red Table Talk' cancellation: 'Good', Chance the Rapper's wife posts cryptic quote after his dance with another woman, Meghan Trainor 'can't walk' after 'nightmare' sex with 'big boy' Daryl Sabara, Famed New York socialite Patty Raynes found dead in her Palm Beach home, New photo of Meghan Markle that she 'never wanted the world to see', Michael J. On his tribute page, Henry is described as someone who "made the best of every single day and worked tirelessly in his many physical and developmental therapies.". Mary and Richard.. Chrissy Callahan covers a range of topics for TODAY.com, including fashion, beauty, pop culture and food. Richard Engel Gives Update on Son Henry amid Coronavirus Pandemic Celebrity Parents Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome Richard. "A big thank you to everyone who sent kind and thoughtful messages, and donated to support medical research to defeat Rett . Quotes displayed in real-time or delayed by at least 15 minutes. [2] Before joining NBC in May 2003, Engel reported on the start of the 2003 war in Iraq for ABC News as a freelance journalist in Baghdad. In fact, Dr. Hoda Zogby, who discovered the genetic cause of Rett Syndrome, believes Henry's cells hold the secrets to finding a cure. Thank you everyone for all the kind messages, from Henry, our Mr. Handsome, he wrote in the caption. Engel and his wife had been open about the child's battle with a rare genetic condition. Engel told PEOPLE in 2019 that Henry was "lacking a conductor gene" and that a medical team at Texas Children's Hospital was "trying to build a treatment that could help immensely.". We've received your submission. Henry and his parents appeared on "Today" in 2018 to discuss the devastating illness and how they were handling it, as well as the potential for future treatments. [8], Engel attended the Riverdale Country School, a highly competitive college-prep school in New York City,[9] where at first he struggled with his schoolwork and progress. [52] In April 2015, NBC had to revise the kidnapping account, following further investigations by The New York Times, who had conducted several dozen interviews, suggesting that the NBC team "was almost certainly taken by a Sunni criminal element affiliated with the Free Syrian Army," rather than by a loyalist Shia group. In March 2011, Engel was caught in an artillery strike while interviewing fighters during a rebel advancement towards former Libyan leader Muammar Gaddafi's forces outside the city of Ajdabiya. Dr. Zoghbi with Henry and his parents, Richard and Mary Engel. He was in the hospital for 6 weeks, but is now home and getting love from brother Theo.. David Rutz is a senior editor at Fox News. NBC News chief foreign correspondent Richard Engel and his wife Mary Forrest are remembering their son Henry, who died in August at 6 years old. Its not just delay. He must have recognized everybody was celebrating him and everybodys excited about it. TODAY's Savannah Guthrie shared her condolences with Engel and his wife, Mary. We always surrounded him with love and he returned it, and so much more. NBC News chief foreign correspondent Richard Engel and his wife Mary Forrest welcomed their second child, a baby boy, over the weekend. NBC News chief foreign correspondent Richard Engel announced Thursday that his son Henry, 6, has died. Get all the stories you need-to-know from the most powerful name in news delivered first thing every morning to your inbox. [15] In May 2008, he interviewed U.S. President George W. Bush, largely about his speech to the Israeli Knesset. NBC News chief foreign correspondent Richard Engel has shared some sad news about the health of his 6-year-old son, Henry. Born on Sept. 29, 2015, Henry was slow to reach certain developmental milestones as an infant. Longtime NBC News foreign correspondent Richard Engel announced Thursday that his 6-year-old son Henry had died after a lifelong battle with a rare brain disorder. 2019, Edward R Murrow Award for Continuing Coverage, Network News. The son of NBC News chief foreign correspondent Richard Engel,Henry Engel, diedeight months ago at age 6 but hes still at the center of the research that will hopefully prevent other children from losing their lives to the neurological disorder Rett syndrome. NBC News chief foreign correspondent Richard Engel, who for years has been open about his son's journey with Rett syndrome, announced Thursday his 6-year-old boy has died. The condition also led to dystonia, an uncontrolled shaking/stiffness. I cant imagine a child who is showered with more love. NBC's Richard Engel shares update on son with special needs - Today He can't feed himself efficiently. "He had . His condition progressed and hes developed dystonia: uncontrolled shaking/ stiffness., Engel continued, He was in the hospital for 6 weeks, but is now home and getting love from brother Theo., According to the Mayo Clinic, dystonia is a movement disorder in which your muscles contract involuntarily, causing repetitive or twisting movements.. [28] Engel covered all major milestones of the war, including the first free Iraqi election and the capture, trial, and execution of Saddam Hussein. Engel added he's looking forward to life as a "Dada"of two. Savannah Guthrie shares sweet tribute in honour of Richard Engel's late son Zero. NBC News chief foreign correspondent Richard Engel has shared some sad news about the health of his 6-year-old son, Henry. Henry had been treated at Texas Children's Hospital's Duncan Neurological Research Institute since 2018. "To parents with typically developing children, a little Dada may not seem like a big deal," he wrote. Do Not Sell My Personal Information, Click to share on Facebook (Opens in new window), Click to share on Twitter (Opens in new window), Click to email a link to a friend (Opens in new window), Taylor Swift's Atlanta ticket prices are dropping big time. On Thursday, the couple visited TODAY and opened up about their late son, his disease and the new balcony dedicated to his memory at the hospital where he was treated in Houston, Texas. While many other children suffer from Rett Syndrome, Henry had a specific genetic mutation never seen before. And with a smile. 2022, Telly Award Winner - Gold - On Assignment with Richard Engel, "Afghanistan: Graveyard of the Empires", This page was last edited on 28 April 2023, at 19:17. Richard Engel Shares Photo Of Late Son Henry On 7th Birthday - Yahoo News [5][6] His father, Peter, a former Goldman Sachs financier, and mother Nina, who ran an antiques store, feared for their son's future prospects because of his dyslexia. "Life has twists, turns and new beginnings,'' Engel wrote. This material may not be published, broadcast, rewritten, or redistributed. Richard Engel - Wikipedia 2023 FOX News Network, LLC. Thanks for contacting us. [76] They have two sons: Henry, born in September 2015, and Theodore, born in August 2019. This week in Houston, at the Duncan Neurological Research Institute they celebrated him, dedicating a balcony in his honor," shared the journalist, 49. One . His muscles are moving. Henry was special in so many ways. Longtime NBC News foreign correspondent Richard Engel announced Thursday that his 6-year-old son Henry had died after a lifelong battle with a rare brain disorder. NBC News' Richard Engel's son Henry dies at age 6 - FOX 29 News It was an exciting Labor Day at Richard Engel's house. The son of NBC News chief foreign correspondent Richard Engel, Henry Engel, died eight months ago at age 6 but he's still at the center of the research that will hopefully prevent other. I'd add more colorful adjectives, but you get the point," wrote Engel, adding that Henry, who was 4 at the time, "doesn't walk or talk. When we first met Henry he couldnt stand steady. [50] In April 2013, Engel recounted his experience in a Vanity Fair editorial, titled "The Hostage". ", RELATED VIDEO: Richard Engel Announces Death of 'Beloved' 6-Year-Old Son Henry. Richard Engel's youngest son takes his 1st steps - Today We were hoping (Henry) would grow out of it. This is how we will honor his life.". 3 min read. We always surrounded him with love and he returned it, and so much more. His quiet fight against this terrible disease was incredible. You've successfully subscribed to this newsletter! NBC News Richard Engels son Henry has died from disorder. "He continues to be an inspiration for Dr. Zoghbi and her team as they work to find effective treatments for Rett syndrome, and they already are making significant progress with Henrys own cells," the post says. Henry Engel died in August 2022 at the age of six. Richard Engel Opens Up About Son's Battle with Rett Syndrome - People Engel grew up on the Upper East Side of Manhattan, New York City. He had the softest blue eyes, an easy smile and a contagious giggle, the journalist, who is married to Mary Forrest,tweeted at the time. [36] Engel's award-winning documentary, War Zone Diary, chronicled the everyday realities of covering the war in Iraq. Please enter valid email address to continue. RELATED: Doctor of Richard Engels late son Henry reflects on time with him: He has this smile. While describing the challenges Henry was facing, the journalist emphasized how lucky he felt to have Henry in his life. Thats what we have to do, she recalled. Henry interacted with the world through sight, sound, and touch. "But he will always be with us, even now he's hard at work to help other children whose lives are more difficult than they should be. "Dear Henry, you will be missed. Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome. By studying Henrys cells several years ago, she learned that Henrys mutation affected the function of the MECP2 gene in such a way that it caused an important protein for brain development to be produced at lower levels. Our beloved son Henry passed away. He was 6 years old. (Nathan Congleton/NBCU Photo Bank/NBCUniversal via Getty Images), NBC NEWS' RICHARD ENGEL SHARES HEARTBREAKING NEWS ABOUT YOUNG SON, ANNOUNCES HE'S DEVELOPED DYSTONIA. This story has been shared 13,615 times. [41] His coverage focused on the challenges of free elections in Afghanistan and the disruptions to democracy in the country. This is how we will honor Henrys life, Zoghbi said at a recent event honoring Henry at the Duncan Neurological Research Institute at Texas Childrens Hospital in Houston, where she serves as director. While Henrys cells are still being used in her research, Zoghbi stressed that shes learned so much from so many Rett syndrome patients on her path to find a cure. [43], In Egypt, Engel often reported from Tahrir Square, interviewing protestors in Tahrir Square as President Hosni Mubarak surrendered power to the Egyptian military.